A Salisbury, Maryland ABC affiliate reporter, who attempted to get an “on-camera interview” with any Centers for Disease Control and Prevention (CDC) “Lyme disease expert”, was shunned by the federal health agency, during Lyme Disease Awareness Month.
Senior News Anchor/Lead Investigative Reporter, Emily Lampa, published the email correspondence back-and-forth with CDC Press Officer, Candice Burns Hoffmann on their news site Saturday (It’s a must read).
In a nutshell, no one was available, including director Dr Tom Frieden, for an on-camera interview and “many of our Lyme disease experts are working on the Zika response or are out of the office this week”.
This drew the ire of Patient Centered Care Advocacy Group President, Bruce Fries:
This is completely unacceptable from an agency responsible for protecting the public health, especially during Lyme disease awareness month, when CDC should be publicizing the dangers of tick-borne illnesses and educating the public about prevention. CDC’s refusal to do an interview for a special report by a broadcast affiliate of a tier-one television network, in a hyper-endemic state during peak tick season, is an abdication of its duty to protect the public health from this devastating epidemic that has grown to more than 329,000 new cases a year in the U.S. and costs our economy more than 3.7 billion annually.
This is a breach of duty, shameful and outrageous, and indicative of gross mismanagement within CDC’s program for Lyme disease.
Patient Centered Care Advocacy Group is focused on generating publicity that spotlights discrimination and harm faced by patients with chronic Lyme disease.
Related:
- Lyme discovery: Borrelia bacteria hides inside parasitic worms, causing chronic brain diseases
- Lyme disease: George Mason early-detection urine test effective according to study
- Lyme disease: A stranglehold of victimization
- Lyme is a ‘do-it-yourself’ disease
CDC knows Chronic Lyme is an Epidemic with as many as one million new cases diagnosed in America annually. They know their guidelines are inaccurate and not factual and they know WE know. They are bullying the millions of sick people who need help. We need doctors to be trained to treat it, and we need Health Insurance to cover diagnosis and treatment. It’s time for a Change and it’s Time for CDC to admit the truth and stop covering up and lying to the public.
Ruby, friend me on facebook. My name is Brooke Kramer. I have Lyme and maybe early dementia from it. I’d like to organize a Lyme registry and work for fundraising for research.
Too bad CDC officials are out of the office due to working on the ZIKA virus….Well hello, there are 500 case of Zika in America but millions of cases of chronic Lyme Disease….WHY AREN’T THEY ADDRESSING THE LYME DISEASE ISSUES FIRST AS IT HAS BEEN AROUND FOR A LONG TIME WITH NO HELP FROM THE GOVERNMENT!!!!! Lyme Disease is much worse than ZIKA anyway. How many deaths from ZIKA vs Deaths from LYME?
CDC committed the crime, why is anyone contacting them instead of the Department of Justice? Silly idea. You dont throw flowers at Hitler and tell him he should be nice.
http://www.actionlyme.org
Hi Kathleen,
I’ve seen your videos exposing the issues involving the vaccines. I’m on year three since the bite and was treated, thought it was gone, now experiencing signs of mild dementia. I’m 32 with no family history of early onset dementia. Plan to get genetic tests to rule it out. Either way, I lost the last two years to medical battles, etc. I understand you helped blow the whistle on Lymerix. Can you tell me a little bit about that? I’m on facebook. Please friend me.
What do you feel is the best thing that can be done at this point? From your video, I understand you believe Lyme is incurable because of the fungal antigen infecting the immune system. Does this mean that even if the bacteria were eliminated somehow, that there would continue to be chronic problems because of the antigen in t and b cells?
I am not a scientist but am very interested in this and helping with the justice side of things.
Brooke
The cdc needs to step up and admit chronic Lyme exsist and train doctors to treat it and make insurance companies pay for treatment we will not back down or not be heard this time
I have been diagnosed with chronic Lyme disease, Babesia and other coinfections in 2009, finally detected by an IGENIX test. All of my mainstream doctors misdiagnosed me over the last 30 years, with Fibromyalgia, Lupus, MS, Upper motor neuron disorder, and many other things. I had the CDC standard tests done, which came back “indeterminate” and was told that means “negative” according to your guidelines. Because of that, I have suffered permanent damage to my tendons,connective tissues, nerves and spinal chord; with lesions on my brain, difficulty walking, talking, and a myriad of other debilitating symptoms. I am proof that Chronic Lyme exists and that the CDC standards are totally inaccurate, and not sensitive enough to detect this micro-organism, because it is not in the blood! It IS in the TISSUES, NERVES AND BRAIN hiding from the immune system! PLEASE FOR THE LIVES YOU CAN HELP, Change your testing to that which IGENIX USES And the GUIDELINES TO ILADS, which has proven to be helpful to people like me who finally got an accurate diagnoses and treatment!!!!
Yes 27 years with Lyme. That is indeed chronic in my opinion. Since the CDC is continuing their denial the TIME HAS COME TO AVOID ANY RECREATIONAL ACTIVITY. I ENCOURAGE THIS TO REACT ON THIS PANDAMIC. MONEY TALKS when the economy collapses due to this standpoint. It has already started in the Northeast. PEOPLE HAVE POWER BY ACTIONS.