Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain, according to the Huntington’s Disease Society of America (HDSA).
It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Each child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes Huntington’s disease.
Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of Huntington’s disease are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
On Friday, March 29, the Central Florida Affiliate of the HDSA and Barefoot Billy’s Friendly Tavern will be hosting the fundraising event, “Night Out for a Cause”.
The event will include Cornhole, Darts, and Pool tournaments as well as delicious beverages. A portion of each draft sold will be donated to HDSA.
In addition, you will a chance to win a Tampa Bay Lightning Hockey Stick signed by #37 Yanii Gourde.
Suzy McDonald is a 29-year Army veteran. She does not have HD but her brother and father were diagnosed with HD.
“HDSA is doing amazing work and the level of awareness currently happening is amazing given the disease is not getting the spotlight that it deserves, she said.
“The number of events that are happening in Florida are amazing. I am looking forward to going to the event as I hope to win that Yanni Gourde stick.”
The where and when of the event:
Barefoot Billy’s Friendly Tavern
3120 W Gandy Blvd
Tampa, Florida 33611
Friday, March 29th @ 7PM – 11PM
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.HDSA.org or call 1(800)345-HDSA.