The Huntington’s Disease Society of America (HDSA) is proud to announce that fifty outstanding Huntington’s disease (HD) care facilities are being awarded the designation of HDSA Centers of Excellence...

May is Myositis Awareness Month and on today’s show I want to take a look at these rare conditions and the importance of this month.  In addition, there is a new analysis on how myositis affects...

23-year-old Kansas State University student-athlete, Samantha Scott reportedly died suddenly due to Lemierre syndrome, a rare, life-threatening infection. Scott was a four-year member of the rowing...

The U.S. Food and Drug Administration today announced it has awarded 18 new research grants totaling more than $19 million to boost the development of products for patients with rare diseases, which affect...

As journalist Sierra Upton notes in a recent YouTube report: “Imagine if you had to wear a hat, a sweatshirt, pants and sunscreen just to walk down the block. Now imagine that you could only be...